Sorry go for the late update been busy. Took little A to the ENT last week and after having his neck checked we learned that the bump and hole on his neck is a birth defect. This will need to be repaired surgically since the hole leaks. They do not want to fix it until after his heart is fixed so they want to see us in October or November. Not sure how I feel about it. Not thrilled at the idea of two more surgeries but they do not want to risk infection
They also said that this birth defect and his heart defects could be genetically linked. But he didn't remember the link. Anyways thats about it.