Saturday, August 31, 2013

Dropping Connor off at grandma's house so he can go to my cousin's little boy's birthday party. It is to close to surgery date to go with Aiden so I am staying home an  hubby? Well he is stuck at work guess our customers decidded no three say weekend for him. Hope my bog boy has fun he is already asking why I can not come with him. Started to two him about Aiden's up an  coming surgery he only partially understood what was going on. He will get it with time I hope. Only thing he asked was if he broke brother's heart which I made sure to fully explain it was not his fault.

Thursday, August 29, 2013

He's five years old!

He's five years old! Wait he's five years old? How did that happen? This year is flying by and now my oldest is five years old... wow.  This year is just flying ans he's five years old!!!!!

But now he's:

Ok what happened and why does time have to go so fast! Boogie boy Iove you and happy fifth birthday! Thank you for helping mommy laugh when she needs it. You have a strength in you that helps mommy so much.

Monday, August 26, 2013


His cardiology appointment went well. They basically wanted to make sure he was well enough for surgery. They checked his weight ans height, he gained 6 ounces since last weight check. Then they did an EKG, saturation and four point blood pressure. He stayed very calm though it all. It helped the nurse blew bubbles while she did the tests so instead of focusing on them he was playing with bubbles. He shook his head no when she was putting the monitor on his toe to look at his saturation levels. They said he is healthy enough for surgery. The EKG does show that his right side of his heart is larger then the left. Which they said they do expect.
We go in the ninth doe preop they are going to make sure the surgeon also works on his rib cage which has some calcium build up. They will try to have it so it does not stick out much. The surgery itself will last suburban hour to two hours minimal amount of time on bypass. Prep will tale the longest. He should hopefully only be on the respirator until that night or next morning. If it all goes well he may be there for three to four days possibly longer. He will just need sometime to heal after.

Sunday, August 25, 2013

I do not realize how small A is until he is around other kids near his age. Goodness is he tiny! Just shows that he really does need this up and coming surgery. We go and see cardiology tomorrow do there will be a larger update either tomorrow or Tuesday. For now I will leave with two pictures first one try yo find the little boy who is hiding and the other more of brothers playing.

Sunday, August 18, 2013

Took Connor to get his hair cut today he did ok. He is not a fan of gettin  his hair cut and telling him he has to wait is extra hard about we manages. His heart is not as short as I wanted but with him you really do not push your luck.

 We already have his Halloween costume for this year. Grandma made the cape and the rest of it has been bought we just need to buy a temporary tattoo of Harry Potter's lightning scar and will he ready to go. Planning on buying Aiden a owl costume so he can match Connor .

Saturday, August 17, 2013

His chest

One of our kitties died on Thursday had a hard time explaining it to Connor. Took him a while to understand but late that night it did finally get through to him and he broke down . I held on to him until he finally fell asleep for the night. She was my husband's cat and had always been in Connor's life. She will be missed. Eventually we will be getting another cat but not for sometime.

I recently to a picture of A and it showed how his chest healed after his surgery.

Admitting it has bothered me and I do hope it heals better after his next surgery. No this does not cause him any pain an  he does not act like he even noticed it. So I  is more of a cosmetic issue but kids are cruel!  He doesn't need extra stuff to be made fun of. Mow his scar that is fine  I want him to be proud of that just like I said kids are mean.

Thursday, August 15, 2013

RIP Princess

we have a walker

So A has been walking a little but with hesitation but as of Wednesday that stopped and he basically walked all say! Bumped his head twice because of said walking. I am hoping because he is filly walking now he will not regress with that due to his surgery.

Starting to figure out what needs to be done for said surgery. One thing us we can bring one of his toys or blankets but it needs to be labeled. Well can't handle being without his blanket. Since my mom has a embroidery machine. His name will be embroidered on one of his blankets. Hopefully that will sleep his blanket separate from the hospital ones.Really so not want it to be lost.

Really dreading the talk I will need to so with big brother won't be giving  him details yet. He deserves to have fun for his birthday before he learns the full details of what is going on. Genoa already acting stresses about stuff and  I know he is just feeding off all of us, he is a smart kkd he knows something is going on :(.

That's all for now for some reason I have been in the mood to post on here. Helps me cope.

Monday, August 12, 2013

Thank you.

I do not know how I would be handling all of what we have  been through and garbage are going to be going through next month without the help of others. My mom has been fondemental on all of this. Huns does not have a lot of vacation time because he ha  not been there long enough to have a larger amount of time of. So I have been doing all of the running with doctor appointments. The very important ones mom has been coming with me. These appointments can be very hard. I usually feel physically drained by the end if them . His last cardiology appointment was so hard! Without her I do not know how I would have done it. Because of this she is coming with me to his next appointment with his cardiologist on the 26. She also has no patience to wait at home for me to call.  Also she will be there for Aiden's preop the day before his surgery. Lastly big brother will be sleeping over with grandma and grandpa that night do we can do what we need that morning and head straight there. We will be giving him a bath that morning ans use antiseptic wipes to help combat infections.

I also want to say thank you to a few other my pediatrician who love my son and even for us a case of pediasure. Next the co-worker who also got us a car of pediasure and the anonymous friend who got us a third case. Thank you, thank you, thank you for caring about my son and helping him gain some weight before the operation. A my co-worker said it is a small thing that we can do to help in the stressful situations you guys are dealing with. It means a lot to us. I love my boys so much and seeing others care for them as well touches my heart.

Sunday, August 11, 2013


Grandma and grandpa took the boys to the park the either day while I was at work. They had fun :).

I am seriously done with buying online from toys r us! I tried to buy from the last year and had my order cancelled because it was sold out. Shouldn't the website be designed to know hoe many they had? I gave them one more chance and preordered Connor's birthday present. It was supposed to be shipped on August third. But seven days later and no update, still shown as a preorder I gave up on them and yup I am done. I did e-mail asking when I would get it and with no good answer yeah they lost my business for sure. I will still go to the store but no more online.

Saturday, August 10, 2013

My boys and their rocket

I know I just posted today but I just had to share these pictures my two boys with there you rocket. Can not believe how big Connor is now!

1 month

Oh little boy I love you so much. You now shake your head no when you do not want something and wait for me to change your diaper so you can try and pee on me and laugh with delight. That mischievous smile you give me when you are about to something you shouldn't. Your eyes squint and your hands fly in theexcited to have mommy running over to get you. Your little wave when I come into the room and the hi you say as you wait for me to pick you up. I love you so much and in one months time I hope you understand that the pain you will be put through is to help make you better. I have nothing more then the want and need to see you grow. To continue to hear you call out my name when your angry or scared. I will be there to wipe away your tears to hold you when your scared. To clwp with you when I sing patty cake.

Mommy needs to find the strength within herself to hand you over in that months time to give you a kiss an  hug and know that you are in good hands. Part of me is dreading that moment with all of my heart. I do not want to see you in pain. Part of me will be in pain to. I know you do not like pain and I will do all that I can to help you in this journey of the heart.

I love you now and forever my little blue eyed boy.

Friday, August 9, 2013

Ugh A's surgery is one month from tomorrow and yeah just had a mini break down. I am not ready for it at all.

Wednesday, August 7, 2013


Yesterday we got a little surprise. While at work sitting at the computer a co-worker came up to me and set down a case of pediasure! So in two days we have been given 48 bottles. Can not say how much this helps us. With my car air conditioner broken, A still in an infant car seat that at some point we do need to replace. Figured he is still easily within the size range of the seat I will keep using it. I feel it is with his size safer seat for him to be in.

We now have a cardiology appointment set up for August 26th. The is will be his preoperative before his surgery in September.

Monday, August 5, 2013

Another Good Appointment

Took Aiden in for a weight check and he has regained the weight that was lost. He is back to 17 pounds 1 ounce. And he is back on the chart with height it's  only one percent but it's a percent!

You can also see how very hard it has been to get him to gain weight. These stomach bugs have been hell on him!

I must say we are so lucky to have his pediatrician he really does care about A. He told he wants to visit Aiden after his surgery when he is in the CICU. They also got me 24 pediasures that about thirty dollars worth. That helps us a lot.

Saturday, August 3, 2013

Just a few pictures while I sit here and wait for a package that I need for work.