A speech therapist is coming to my house today to look at little A and help him with swallowing. I think its odd there called a speech therapist because a three week old doesn't do much more then grunt, coo and cry! Well guess I will see how it goes and I imagine it will be more training for me!
I've been busy of course. Taking care of my little guy is a lot more work then a normal new born. The feeding part takes a lot longer. About every four hours I have to rinse out the tubing used to give him his food add new prime it until there is no air and then start it up. During all of that I'm pumping a lot, and making a nutrition busted breast milk (add a small amount of formula to it). The picture below shows the iv stand with the feeding bag and pump. The back pack is what I can use when on the go, which right now I don't feel like going to many places. So far I've only taken him to see the pediatrician, which yay he's finally above his birth weight! funny side note they do not take back the IV pole so yeah we have an IV pole now. What am I suppose to do with an IV pole after hes off of the NJ tube?
He is also on oxygen so there are a few oxygen tanks around my house one big one and two little ones which can be used on the go. the small ones are heavy I got a real work out taking it all to his pediatrician.
One thing I am very surprised about is how well his incision is healing. Below is a picture of it when he was three weeks old, that would be two weeks post op. It looks so amazingly well! he will have a scar but I feel it will be really faint in time.