There was so much information given yesterday that I did not touch upon all or most of it. First thing is after the echogram they brought us into a consultation room, very warm colors, comfortable chairs and Kleenex boxes everywhere. By that point I already suspected what they were going to tell us because the Doctor said certain things during the echo that had me on high alert. Now amazingly I did not cry in that room, didn't happen until afterwards. Hubby helped a lot. He'll be my rock in all of this . He's much stronger when it comes to these thigns then I am but he's been there, ina different way but yes been there.
He himself has chronic asthma and when only 2 weeks old had an asthma attack that almost killed him. his younger brother was stillborn and they revived him. They had told his family his brother would always have problems and would never be able to do anything on his own. Well he now has four girls and works and does just fine on his own! His sister was a preemie and she's fine as well. Now there has been tragedy in his family as well. His oldest brother at 11 years of age was hit and killed by a man ion drugs. I guess all of this has made him very strong with all of this. his attitude right now is well the surgery will make him stronger. Yes those weeks will be hard but its a small part of his life and he will need it to live a normal life. I can''t argue with him there its still a lot to deal with those three weeks will be so beyond difficult.
Now one other thing they touched upon is how he will be feed. He will be feed by a tube for the first three weeks and they generally after they take more to the bottle the the breast at first. Now they are all set up for this as well. My room will be supplied with a breast pump so I can start pumping once he is here and well fed. I will of course need to keep it up after I am discharged which won;t be a problem I already have bought a pump knowing I would need one when I went back to work.
I've also gotten a few messages from people on a abbay board I go to one which is really nice know:
They thought my son had that and life flighted him from Logan to
Primary's. There I met a couple who had like 3 boys (I think, maybe 4)
anyways, they said each one of their boys had the coarctation (which I
guess is REALLY rare for it to run in families like that). They told me
that the surgery was really simple (relatively speaking of course) and
that there most recent kid (who was there at the time) was just going in
to have it done. At that point they barely seemed concerned. So
anyways, I am tell you this just cause perhaps it will help you not
stress so much as I guess it is a VERY routine surgery for them at
Primary's. The Dr's there are fantastic, as are the nurses!! I am sorry
you have to deal with this, but Primary's is a GREAT hospital and your
baby couldn't be in better hands!!