No words

Its a rough time in the IHH heart community.  sitting here debating how to write this just as Monty Python said Life's a piece of shit. A little girl who received a new heart when she was a baby at 4 years old flew to Disney World, for her make a wish. The day she was suppose to see Minnie she ended up in the hospital instead.  She was in rejection and her heart was in bad shape. She went into to have a cath something went horribly wrong. She was put onto life support. Tonight they have determined that she is brain dead. Instead of playing in Disney world with there little girl her family is now saying good bye. There blog.


 I'm going to end this post with a quote from another heart mom its how we are all feeling right now:

I feel like the world should stop and pay attention to these heart kiddies that are fighting so hard. All the news stations should be talking about these heart kiddies. But the world keeps going. There is no fan fair, no rallies, no public outcry. But today the world is filled with private broken hearts, pleading prayers, simple expressions of love and support. The things that were important yesterday, like what to make for dinner and whether my kitchen is clean, just don't matter. Today is for spending cuddle time with family, sincere prayer and reminding people that they are loved.