It one of those nights that I realize I need to step away from the heart community becasue many of the things I am reading is making my heart ache. Ache for the families and little warriors dealing with CHD. I feel myself so lucky with how well Aiden is doing and that his CHD wasn't nearly as bad as some others!
I wasn't given the option of comfort care. I recently read one mom chose this her baby's CHD was so bad that she would not live through her surgery so they opted not to have in and instead took her home to care for her and love her for her short time on this Earth.
Then there is little Matthew and Kylie. It seems, don't know the details that Matthew isn't doing well. he is been in the hospital for over a hundred days and his only hope to survive is a new heart, one that has not come. I can't imagine waiting for something like, waiting for another person's child to die in order for yours to live. Its..... unimaginable.
Don't mind me guys I just feel sad and yet a little ... guilty? That my Aiden is doing so well.